This past Monday, I had occasion to attend the Lymphedema Conference organized by the Alberta Lymphedema Association. The guest speaker I heard was Dr. Andrea L. Cheville, Associate Professor of Physical Medicine and Rehabilitation, Mayo Clinic, Rochester, MN. Dr. Cheville explained the anatomy, physiology and pathophysiology of lymphedema in clear laymen terms. Over 300 people attended – doctors, nurses, caregivers, suppliers and most importantly, those with lymphedema.
Finally, someone is speaking out about lymphedema and what it truly means for those who either are born with lymphdema (primary) or develop lymphedema from trauma such as cancer surgery (secondary).
If you have an opportunity to attend a similar conference in your area, I highly recommend you go and take as many people with you as are interested. In the United States, you can contact the National Lymphedema Network for associations in your area.
Another resource is books coping with cancer. Several deal specifically with lymphedema. Knowledge is power.